The Lonely Pipette : helping scientists do better science
The Lonely Pipette is a podcast where scientists share tips to help you do better science. The episodes include conversations with researchers around the world. Renaud Pourpre and Jonathan Weitzman will talk to inspiring people to learn about their habits and recommendations for all scientists. Don’t stay alone, come join The Lonely Pipette community!
The Lonely Pipette : helping scientists do better science
TLP #28 : Curing with a Community - David Fajgenbaum
In this episode, we kick off our Season 3 guests with David Fajgenbaum who shares his extraordinary journey to cure himself from Castleman disease.
- David shares his very personal story of searching for a cure to his own disease
- He describes how having a vision for the future helped him to survive
- He insists that patients can be part of the process and can be active collaborators in the search for cures
- He pleads for a shift from an Investigator initiated model to a Community initiated model involving collaboration between researchers, clinicians and patients
- David also insists that approved drugs could be used to treat additional diseases
- He tells us about why and how he wrote a book, “Chasing My Cure” about his journey
- He describes the value that good mentors bring
- He advises to keep focused, surround yourself with good people, learn to delegate and to take important recruitment decisions
- David recommends getting as much feedback as you can from many people
He mentioned these labs, scientists, institutions and companies
- University of Pennsylvania School of Medicine : https://www.med.upenn.edu/
- Georgetown University : https://www.georgetown.edu/
- Castleman Disease Collaborative Network : https://cdcn.org/
- Castleman Disease : https://rarediseases.org/rare-diseases/castlemans-disease/
- University of Oxford : https://www.ox.ac.uk/
- National Institutes of Health (NIH) : https://www.nih.gov/
- Janet Woodcock from the FDA : https://en.wikipedia.org/wiki/Janet_Woodcock
- Brian Wallach : https://en.wikipedia.org/wiki/Brian_Wallach
- I am ALS : https://www.iamals.org/
- Frits van Rhee : https://cdcn.org/leadership-team/frits-van-rhee/ | https://uams-triprofiles.uams.edu/profiles/display/127377
- Sharon Terry : https://en.wikipedia.org/wiki/Sharon_F._Terry
- Arthur Rubenstein : https://www.med.upenn.edu/endowedprofessorships/arthur-h-rubenstein-university-professorship.html
- Benjamin Castleman : https://en.wikipedia.org/wiki/Benjamin_Castleman
To find out more about David and Every Cure visit these links
X-Twitter : @DavidFajgenbaum
Every Cure https://twitter.com/EveryCure
David’s LinkedIn https://www.linkedin.com/in/davidfajgenbaum/
Every Cure’s LinkedIn : https://www.linkedin.com/company/every-cure/
David’s Book “Chasing My Cure: A Doctor's Race to Turn Hope Into Action” : https://chasingmycure.com/
To find out more about Renaud and Jonathan :
- Twitter : https://twitter.com/LePourpre
- LinkedIn : https://www.linkedin.com/in/renaudpourpre/
- Twitter : https://twitter.com/Epigenetique
- LinkedIn : https://www.linkedin.com/in/jonathanweitzman/%20
More about the soundtrack :
Music by Amaria - Lovely Swindler https://soundcloud.com/amariamusique/